Still fighting... Sort of. · 2:42am Jul 31st, 2023
Well, just thought I'd pop in to give an update. Ended up having a pretty bad episode today at home. Couldn't walk, talk, or operate my hands enough to call for help, but was thankfully not alone. Two friends of mine were there to help take care of me and call an ambulance and even stick by my bedside in the ER.
Still no progress for a diagnosis or a cure, but at least I'm not giving up.
I have, at least, been going back and fixing old formatting issues with spacing, punctuation, and some incorrect grammar/missing words, etc, that were present in the first arc of CTTB.
I can't do much writing, but I can at least fix those fuck ups and also rewrite a few sentences that were previously left lacking context or simply poorly written and difficult to understand.
Otherwise, this week I meet with some legal council about my issues and moving forward. I'll also be seeing some more docs and even my Neurologist again and hopefully make some headway (see what I did there) about my problems.
One downside is that I may be looking at greater limitations toward my physical liberties. As in, I'm probably going to be walking a lot less because that seems to be fucking me up more and more these days, which is already signs for a death sentence... but what else can I do at this point?
(Hug) get well soon! You have good friends if they stay with you all the way
Not much more I can do than give you digital support, but as someone who has been bedridden recently for several weeks (gnarly ear infection that got real nasty for a while) all I can say is find some way to have something to focus on to make things seem better, whether it be a book series, a game, or company. It makes the pain and bedridden states seem a little less horrible
Hope you feel better soon.
I wish you a swift recovery. Take care of yourself.
Hel, I might even break out the old grimoire and throw some blessings your way.
Though I haven't messed around with the occult for years so results may vary.
I wish you get better soon, I am rather surprised no doctors can even narrow it down.
In germany if one doctor don't find stuff, one get send to the next for their expertise might find something.
Maybe make a vacation in germany for some well trained hospital staff?
Healthcare is a big thing in Germany and even refugees get good medical care if the are polite and can pay the lowest rate of a Healthcare ensuring company. Why it's so complicated outside Germany is beyond me.
Best of luck and I hope you get better soon, at least a concrete diagnostic would be great...
So sorry! I hope things get better for you soon!
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Thanks, and yeah. I'm lucky to have these guys with me.
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indeed. true friends
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I couldn't ask for much more than that.
Damn. Sorry to hear about the infection. I had those a bit while growing up and they were always terrible. As for keeping myself busy, I read/listened to It's Complicated and started on the sequel to help pass the time since I wasn't able to write. That, and I did a little editing of my first arc of CTTB, since it's not as involved.
I do really want to get back to writing, though. Like, full-on creative writing and continuing the story, because there is still so much trapped up in my head I want to get out.
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Slowly but surely... I... might be getting there?
I dunno. My whole situation is fucked, but I'm not bowing out just yet.
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Well, I didn't stay in the ER overnight again, so that's a plus. Otherwise, I'm doing all I can to help take care of myself.
Hey. Far be it from me to look a gift horse in the mouth. I'll take what I can get.
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It's not for a lack of trying. All my tests keep coming back clear. That, and all the best guesses for what I have don't match my symptoms as they present themselves. Things like, me staying conscious while having my seizures/stroke-like symptoms. At some point where I can't move on my own or talk, I should have blacked out or suffered such distress that memory loss would have affected me, but that's never been the case.
I've seen many doctors in different areas of specialties as well as been seen in different hospitals. So, it's not really a lack of variety that I'm worried about... yet.
Not really sure I'm fit for travel at this point.
I'm fully insured, thankfully. Getting any work done isn't the issue. The problem is still trying to figure out what's causing my health issues.
Here's to hoping. Cheers.
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Thanks. Lord willing, that will be the case. For now, I'm just doing all I can.
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I've been going through a bit of a writing wall myself, and it sucks when I know I can be either continuing the Era of Harmony series or pumping out the new series I've been working on, I just can't will myself to write...and like yourself I've been going through some older stories (finished its complicated last week actually) and been re reading to stir the mental pot
Here's hoping something sticks for both of us, take care brother!