Epilepsy awareness blog! · 10:20pm Mar 17th, 2020
"Epilepsy is the thief that steals your body, your energy, your health, your family, your friends, and the person you use to be."
"I have this "friend" that is invisible and follows me everywhere, and refuses to leave even when I am home. This friend is epilepsy. I don't care much for this "friend" though I have known them for my whole life. They are not kind. They attack me with violence or silence, however their mood strikes them, but always with out warning. They injure my body, and tears through my mind. Steals my memories, and leaves me broken or bruised. They separate me from the world where no one can see us. Epilepsy is invisible but their always with me."
"If people with epilepsy our life in six words.
It all changed in an instant.
The life I knew was gone.
Life will never be the same.
It came out of the blue.
One hit and now I am twitchy.
Love fearlessly, fight relentlessly, feed joyously.
Very slow then all at once.
Waves of onlookers crashing around me.
Always in the background keeping watch.
Unbelievably hard, rewarding, unpredictable, stormy, scary.
Chronic worsening illness with no cure.
It came but never conquered.
One day it came out quick."
"I didn't hit my head this time I survived, No status of epilepticus, I no I could have died. It could have been fatal had my landing been wrong, or if the force of my seizure was to brutal, too strong."
"I am here, seizures, you have not won. You seizes me at your whim at any time day or night. Confuse my mind and trick my thoughts. You curl my limbs and twist my body. Yet I am here, seizures, you have not won. If someday, you strike & my Breath is no more, you will have found no victory still. You may seize my body, but you can never seize my soul. I am here, seizures, you have not won. You are weak, for you to strike from the shadows. We are many, the ones that you attack. We are here, seizures, you have not won."
"Sometimes the strongest among us are the one who smiles through silent pain, cry behind closed doors, fight battles no one knows about."
"God grant me the serenity to accept the things I cannot change, courage to change the things I can, and wisdom to know the difference."
This is what epilepsy feels like and why people need to know that it isn't a joke! I have epilepsy and I am not going to deny that. I have been fighting all my life and their is no worse Battle than dealing with epilepsy because even if you die from it you still have to say that you fought it with your best effort.
I feel this
I am so sorry that you have had to fight this your entire life. If I had one wish, it would be to make you have a normal life where you can just be you.
I'm so sorry.
I agree with Coco Candy, 100%.
Perhaps one day we will have a cure for this horrible condition